Long-Term Care: When the Quality of
Life Carries a Price
By
Sandra González Curran
Fall 2004
José Martínez’s 73-year-old
mother had always enjoyed good health, but when she arrived from Cuba
in 1997 to live with his family, she was diagnosed with Parkinson’s
disease and aggravated osteoporosis. “I was completely unprepared,” Martínez
recalls. As her health quickly deteriorated, Martínez, an only
child, realized he couldn’t give her the constant care she needed.
Because he and his wife travel regularly for work, a nursing home seemed
the only option. “It was devastating but I felt like I had no
other choice,” says the 54-year-old resident of Washington, D.C.
Like most private health insurance policies,
the $650 per month Martínez
was paying for his mother’s health insurance didn’t cover
her long-term care needs. Suddenly he faced paying about $230 a day
to place her in a nursing home.
The idea of needing assisted-living or nursing-home
care is not something most people like to think about and, even less,
prepare for. After all, aren’t we living longer, healthier
lives than any generation before? Unfortunately, longer life spans
also mean an increased likelihood of developing physical and mental
disabilities associated with aging. According to the U.S. Department
of Health and Human Services, almost half of those reaching age 65
will use a nursing home at least once in their lifetime.
| Families suddenly faced with long-term
care expenses often procrastinate and make expensive financial
mistakes |
And consider the cost. According to a recent MetLife study, the average
stay at a nursing home, 2.4 years, can quickly deplete a nest egg of
up to $150,000.
While culturally and historically the Hispanic
community has taken care of its elders, today only 27 percent of U.S.
Hispanic households care for a friend or relative in the home, according
to a report by the Administration on Aging. And aging parents may not
be able to rely upon their children to provide care in the future.
The increasing divorce rate and childlessness of the baby-boomer generation
is making it less certain that older persons will be able to rely on
family support, states the 2002 AARP report “Beyond 50: A Report
to the Nation on Trends in Health Security.”
Families suddenly faced with long-term care
expenses often procrastinate and make expensive financial mistakes,
says Thomas West, a financial adviser in McLean, Virginia, and Bethesda,
Maryland. While procrastinating is understandable, he says the danger “is
that a family will quickly drain their checking and savings accounts
to pay for long-term care services.”
With health care costs rising, West is seeing
more clients struggling to pay their bills. “Overnight a client will have to come up
with $4,000 or more each month to put their loved one in a nursing
home,” he says. By making a few long-term financial decisions
early, the ability to pay for long-term care expenses for the longest
time possible can be increased.
Before a long-term care crisis arises, consider
the following tips to avoid some of the most common—and costly—mistakes.
Don’t Wait to Organize
When long-term
care is needed, many families understandably focus all attention on
the health condition. But taking time to organize finances and seeking
professional help before buying long-term care services can preserve
assets and save money. “It isn’t
general knowledge that long-term care expenses, up to a certain amount,
are tax deductible,” says Karen Johnson, a C.P.A. who works with
retirees in Virginia. “Without knowing which tax deductions are
available, a family may pay more.”
Begin organizing by finding current statements
from the following: bank accounts; safe deposit boxes; health, life,
and disability insurance; employer benefit handbooks; investments;
deeds and titles to house and vehicle; and tax returns. If you have
a durable power of attorney, medical directives, a will or a trust,
find them and make copies. Make a list of where these important documents
are kept, but share it only with a trusted individual.
Review Cash Flow as Soon as Possible
Having your financial situation at your fingertips lets you act quickly
in the event of a major health change or if placement in a long-term
care facility is required. Establish an accurate accounting of how
much money comes into household accounts from employment, pensions,
Social Security, and other sources. Having realistic expectations of
the cost of care, which can range widely, also is important.
While some families can count on pensions and
Social Security, others must rely on savings or family support to handle
caregiving expenses. Knowing which funds are available now or will
be in the future can significantly reduce the stress of financing long-term
care. Remember, having a modest nest egg could preclude the individual
from qualifying for Medicaid. In most cases, savings must be used to
pay for personal care and be depleted before Medicaid will cover expenses.
When reviewing potential expenses for long-term
care, get accurate information from health care professionals about
current and anticipated costs. The going rate for a one-year stay
in a nursing home in 2003 was $66,153, according to the MetLife Mature
Market Institute. Rates will continue to rise. Costs also vary widely
depending on location, so speak with health care professionals, and
do research. Visiting several facilities will help you to discover
differences such as whether there is Spanish-speaking staff or if
incidental charges—for
example, medication management or incontinence products—are added
as fees.
Explore Appropriate Resources
Contacting
government and professional support services could prove your most
important step when considering long-term care. Myriam Posada-Lemmerman
is coordinator of the caregiver program for Aging and Disability Services
at Maryland’s Department
of Health and Human Services. For more than a decade she has counseled
Hispanic families in desperate financial situations due to long-term
care expenses.
“I’ve seen children ready to sell their homes to pay for
their parent’s hospital bill, and women who have left their jobs
to care for a parent at home,” says the Colombia native. “Most
Latinos will spend their last dime before seeking help and advice from
the government.” Yet obtaining such advice could not only save
money but also ensure finding the best long-term care solution.
Martínez was lucky to have been referred
to Posada-Lemmerman when looking for a nursing home. “Through
Myriam, I was introduced to the concept of group homes,” he explains. “This
was a much better solution for my mother because it offered round-the-clock
care in a small, family- oriented environment.”
When Teresa Bevin’s mother shattered her shoulder late last
year and needed to recuperate in a nursing home, Posada-Lemmerman once
again found a solution. Each facility that Bevin, 54, visited claimed
Medicare would not cover any of the costs. “But with Myriam’s
help,” says the Cuban-born writer from College Park, Maryland, “Medicare
covered my mother’s first six days of expenses.”
AARP reported in 2002 that “out-of-pocket
spending on long-term care represents the greatest health-related financial
risk for older Americans….”
Prepare before a health crisis. Begin thinking about financing long-term
care for your parent, another loved one, or yourself. Following the
few steps above could be the difference between having a stressful
experience or an empowering one.
For help on planning for long-term care, for either
yourself or a loved one, check out our Sites
to See for useful links.
Also, find out how Puerto Rico is
trying to provide sufficient services to a rapidly aging population
as it faces an impending long-term care crisis.
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