The reality is harsh. “She doesn’t know who I am. She can’t do anything by herself,” says Florida resident Jose Rodriguez, 70. His wife Ana, also 70, was diagnosed with Alzheimer’s in 1999. “It came as a shock,” he recalls.
The Rodriguezes are part of a growing wave of Latino families dealing with Alzheimer’s disease, or AD, a ravaging illness that erases the memory, destroys other mental abilities, and defies scientists’ search for a cure. According to the Alzheimer’s Association, some 200,000 U.S. Hispanics currently have Alzheimer's, a number projected to increase to 1.3 million by 2050—a growth rate of 600 percent.
But why should Hispanics get Alzheimer’s an average of almost seven years earlier than white non-Hispanics, as the association reports? And why, despite the fact that so many Latinos lack medical insurance and are so often late in seeking treatment, do Hispanic Alzheimer’s patients live 40 percent longer than white non-Hispanics?
There are no clear-cut answers.
A study of some 31,000 patients from 1984 to 2005 at 30 Alzheimer’s Disease Centers nationwide showed that Hispanics with Alzheimer’s live significantly longer after diagnosis than the general population—a finding that remained true even after factoring in age, gender, and living environment.
The reasons for the findings remain unknown, and further research is needed, according to the study’s lead author, Kala Mehta.
Part of the reason may be that Hispanics are living longer overall. The U.S. Census Bureau projects that by 2050, Hispanics will have the greatest life expectancy of any ethnic group in the United States, averaging 87 years. With increasing age the single greatest risk factor for AD and an earlier onset of AD seen in Latinos, the situation “is reaching epidemic proportions,” says Yanira Cruz, president and CEO of the National Hispanic Council on Aging.
Risk Factors
In fact, the risk of getting Alzheimer’s nearly doubles every five years after age 65, according to the Alzheimer’s caregiver community website KnowItAlz.com.
Because Latinos can be of any race and come from so many different backgrounds, a genetic component is highly unlikely—although children of AD patients are at a higher risk of developing the disease: having a parent or sibling with Alzheimer’s increases the risk more than threefold.
Rather, the early onset of Alzheimer’s among Hispanics is driven by several factors, says Dr. Maria Herrera, a neurologist who practices in a largely Hispanic Miami neighborhood. These include a higher incidence of type 2 diabetes, obesity, high cholesterol, and hypertension, all believed to abet Alzheimer’s.
Get Help Early
One key to managing the disease is early diagnosis, stresses Dr. Herrera.
“While there is no cure, treatment medication can make progression slower [and] patients more functional for longer,” says Herrera, who regularly prescribes medications that prevent the breakdown of acetylcholine, a brain chemical involved in memory and thinking.
A recent first-ever Hispanic-only clinical trial of an Alzheimer’s treatment—the Eisai/Pfizer drug Aricept—on patients in the earlier stages of the disease yielded positive results: cognitive function improved significantly, as did object recognition, speed of mental processing, attention, and concentration.
“The message,” says Dr. Oscar Lopez, an Argentinean researcher at the University of Pittsburgh who conducted the study, “is that if you have Alzheimer’s, get treatment; it helps.”
The bad news? “Many Hispanics don’t have insurance and can’t afford the medicine without insurance,” Herrera says. “I give away samples, but I can’t give an optimum dose; the samples are a lower dose.”
The disease profoundly affects Hispanic families—who the U.S. Census Bureau reports are twice as likely to live in multigenerational households that include elders. Not only does AD strike Latinos disproportionately, but Hispanic families are more likely to care for the afflicted relative at home. In addition, “many can’t afford nursing homes or assisted-care facilities,” Herrera says.
It’s doubly important, then, to get a medical diagnosis and treatment early.
Latinos typically believe memory loss is “just old age,” says Cruz, of the National Hispanic Council on Aging. “The individual tends to go to the doctor when already in a bad way…It presents a challenge to families when medicines to delay Alzheimer’s are not utilized. They don’t have time to plan. When diagnosed, it’s too late; they are already at a disadvantage.”
Care for Caregivers
Yet while caring for the AD patient at home generates enormous financial and emotional stress, especially on the caregivers, the personal care and loving, familiar environment might be a key to the longer lifespan seen in Hispanic AD patients, Cruz surmises.
“We should encourage that [type of care] by getting caregivers help,” Cruz says. Otherwise, “they are under unimaginable pressure. They often have to quit their jobs. One woman told me how depressed she’s getting taking care of her mother while looking after her kids.”
National, state, and community organizations can help. And the Alzheimer’s Association offers bracelets and pendants bearing a code and an 800 number that allows the association to locate relatives and caregivers should the patient wander off or get lost.
To boost the patient’s quality of life, Dr. Herrera recommends “keeping the loved one involved in family affairs.” Jose Rodriguez has seen firsthand the benefits of doing so.
“I take Ana to restaurants—she’s always out with me,” he says. “We go to Parrot Jungle, Disney World, the movies. I don’t keep her in the closet.
“Love is so important. Learn her body language, how she reacts,” Rodriguez counsels. “I know my wife better than before, every movement, her face. You can’t change them; you have to change yourself. But there’s a solution for everything. There’s always a way.”
Support from family members is definitely a factor that researcher Kala Mehta identifies as an area for future study. Perhaps it’s love like Rodriguez’s that allows Latino Alzheimer’s patients to live 40 percent longer.